This song seemed appropriate for my mood today. Enjoy.
This song seemed appropriate for my mood today. Enjoy.
This is my best friend and her perspective. When you have chronic illness, it’s hard to keep friends close because you constantly have to cancel plans and she does get that from me. I have tried my best to educate everyone in my life what Lupus is. I believe that has helped my relationships.
the little sleep I have had, working over 12 hours a day, going out 10 days straight. I Love you Tabitha.
Living with many Autoimmune Diseases is difficult enough. I have to keep on living a life, being a mother and a wife. I have to deal with my pain and I have to keep a handle on my emotions.
Over the next few days I will share some of my closest family and friends writings on how my illness affects them. I asked each of them to write how my illness affects them. The first one will be from my Father, the second one will be from my 14 year old daughter and I will continue for a few days with a few more people.
The reason I am doing this is because I want to bring awareness that our families and friends are deeply affected.
See previous post for letters from other family.
Let’s get real for a minute.
I think at times I downplay the seriousness of my autoimmune diseases and I don’t allow others in on the reality of my story.
My major organs are being attacked. I have heart blockages in my right bundle branch and I have the beginnings of kidney issues due to lupus. My digestive system doesn’t work as at it should, for my digestive system to break down foods it takes three times as long as a normal system.
I have over ten autoimmune diseases all of them have symptoms of their own. Lupus, Mixed Connective Tissue Disease, Lupus Nuephritis, Gastroparesis Nuerocardiogenic syncope,Sjogens, Autonomic dysfuction, Esophageal dysfuction, Arthritis, Antiphospholipid Syndrome, Autoimmune dysautonomia, Raynaud’s phenomenon, Myositis, chronic pain syndrome, and fibromyalgia. I am sure I have forgotten to list something because I also suffer from short term memory loss.
In case you missed it……
Living with many Autoimmune Diseases is difficult enough. I have to keep on living a life, being a mother and a wife. I have to deal with my pain and I have to keep a handle on my emotions.
Over the next few days I will share some of my closest family and friends writings on how my illness affects them. I asked each of them to write how my illness affects them. The first one will be from my Father, the second one will be from my 14 year old daughter and I will continue for a few days with a few more people.
The reason I am doing this is because I want to bring awareness that our families and friends are deeply affected.
Living with many Autoimmune Diseases is difficult enough. I have to keep on living a life, being a mother and a wife. I have to deal with my pain and I have to keep a handle on my emotions.
Over the next few days I will share some of my closest family and friends writings on how my illness affects them. I asked each of them to write how my illness affects them. The first one will be from my Father, the second one will be from my 14 year old daughter and I will continue for a few days with a few more people.
The reason I am doing this is because I want to bring awareness that our families and friends are deeply affected.
My first letter will be from the man that I call my Spiritual Father but by all rights and purposes he is my Dad.
I am so proud of this girl right here. Not only does she play her flute beautifully but she is a great daughter.
Please Share This.
I wanted to take the time to wish all of my followers, readers, and anyone that sees my posts a Merry Christmas!
My fellow Spoonies: remember to conserve your spoons,( energy) , do more sitting than doing, take advantage of all the family in your house this year and allow them to help. Your body will thank you on Tuesday!
Custom handmade merchandise made in the USA.
Survive Narcissistic Abuse, fight Chronic Illness, and begin to Heal.
I dont have the answers, just a lot of questions.
Fighting chronic illness with cuss words, sarcasm, and God’s fulfilling love
Looking for natural help to heal
Educate. Support. Fight.
The greatest WordPress.com site in all the land!
Learning to not only survive, but thrive gluten-free
Apps for any screen
Custom handmade merchandise made in the USA.
Survive Narcissistic Abuse, fight Chronic Illness, and begin to Heal.
I dont have the answers, just a lot of questions.
Fighting chronic illness with cuss words, sarcasm, and God’s fulfilling love
Looking for natural help to heal
Educate. Support. Fight.
The greatest WordPress.com site in all the land!
Learning to not only survive, but thrive gluten-free
Apps for any screen