While the world has stopped turning due to Covid-19, in between homeschooling, being a wife, mother, dog mom, and having fourteen zillion chronic illnesses I have found a new, uh… hobby. So I thought I would share some of what … Continue reading
Oddly enough, Covid-19 quarantine is similar to the life of a chronic illness warrior…at least it is in mine. Isolation, being fearful of catching something in the outside world, not knowing what comes next or what to do, there are … Continue reading
This week I was able go watch my daughter, Katie, play in her high school band. She had some solos, so you know this mama was proud. Katie is 16 years old and she is not only super smart but … Continue reading
Gratitude is the simplest way to shift your life perspective. In a fast paced world, with all things being advertised as “instant,” , with all things being available at the tips of our fingers, it can be incredibly easy to get distracted from taking the time to be present and actually feel a sense of gratitude.
One of the things that my illness has taught me is time is the most precious gift I can give and if I am not present while giving it, it doesn’t count. I have learned that my mere presence doesn’t mean I am present. So today, on Thanksgiving Day, I am choosing to rise above all of the hurry and move myself into a conscious state of gratitude. I am choosing to be present, choosing to acknowledge the good things in my life and choosing to enjoy them.
They say laughter is the best medicine, so today I am going to enjoy all the belly laughs I can and take in all the blessings that God has given me.
How many days are you present with gratitude? I mean really connecting with those around you? Take the time to have a good laugh today, take the time to connect on deeper levels with loved ones and really be present, and gratitude will certainly follow.
I can face things that are not in my control, because I rest in knowing that God is in control.
They say that which does not kill will make you stronger and right now I am I believing that. I continue to have major swallowing problems along with my lupus and connective tissue disease. Night after night, I struggle going to sleep with anxiety of what might happen when I am unconscious. In the last few months I have had aspiration pneumonia from food and fluid getting into my lungs twice and I went into sepsis the last time. I have been seeking treatment tirelessly, praying for a miracle. I have so many rare diseases, that nobody knows how to begin to treat me. It really does something to the mind when the doctors look you in the eyes, and say, there is nothing we can do but I am referring you to another service.
I know that my fate really lies in God. I am resilient because of God, and even though I am weakened right now, my strength lays in my heavenly father. God is in control of this so no matter what I will not fear the outcome and I will remain faithful and hopeful.
We have already had quite the excitement for September with Hurricane Dorian threatening to hit Florida’s east coast. Last weekends plans were interrupted so today headed down south just a couple of hours away and we celebrated my son’s thirteenth birthday at the Tampa Bar Aquarium today. I don’t get out much these days but today I used my power chair and I have to say that it was refreshing to do something normal.