Day 2…How does Autoimmune Disease affect our family? A note from my 14 year old daughter.

Being the daughter of a mom that has lupus can be tough sometimes. I have struggled with anxiety since the very beginning. Several times I would be at school and wonder, “Will my mom be okay?.”  It seems like we all have a jump scare at least once a year. I always sit in my bed every night and pray to God about
everything but my mom is always at least one of the topics. I used to be afraid to tell my mom about my personal problems because I would be afraid that it would stress her out even more than she already was. I felt like I had a voice in the back of my head telling me not to worry but I didn’t listen to it. That was one of my big mistakes I made through this journey. Ever since 5th grade, I went through anxiety
thinking I may come home to something bad happening.
If I could give advice to another daughter that has a parent in this situation, I would suggest not to worry because God has a plan for all of us. Usually when these things happen it’s to teach us a lesson. Personally, for me it has taught me hope. While writing this I
had to think about what hope actually was. When I searched what “hope” meant it said, “a feeling of trust”. I learned to trust God with my mom. Every now and then I still think, “Is my mom going to be okay?”, but I still say I need to trust God.
Romans 5:5 says, “Hope does not disappoint us, because God has poured
out his love into our hearts by the Holy Spirit, whom he has given us.”


In case you missed it……

Living with many Autoimmune Diseases is difficult enough. I have to keep on living a life, being a mother and a wife. I have to deal with my pain and I have to keep a handle on my emotions.

Over the next few days I will share some of my closest family and friends writings on how my illness affects them. I asked each of them to write how my illness affects them. The first one will be from my Father, the second one will be from my 14 year old daughter and I will continue for a few days with a few more people. 

The reason I am doing this is because I want to bring awareness that our families and friends are deeply affected.

When we are physically  hurting, they are emotionally hurting for us. Sometimes it’s hard to express that you love someone when it hurts so bad.

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