How does living with Autoimmune Disease affect our families?

4 comments

Living with many Autoimmune Diseases is difficult enough. I have to keep on living a life, being a mother and a wife. I have to deal with my pain and I have to keep a handle on my emotions.


Over the next few days I will share some of my closest family and friends writings on how my illness affects them. I asked each of them to write how my illness affects them. The first one will be from my Father, the second one will be from my 14 year old daughter and I will continue for a few days with a few more people. 

The reason I am doing this is because I want to bring awareness that our families and friends are deeply affected.



When we are physically  hurting, they are emotionally hurting for us. Sometimes it’s hard to express that you love someone when it hurts so bad.

My first letter will be from the man that I call my Spiritual Father but by all rights and purposes he is my Dad.

Actually I feel more like a father to Tabitha than just a spiritual father. I hurt when she hurts, I’m sad when she is sad, I empathize when I can do nothing but offer words of comfort. I have walked a hard road with Tabitha for nine years, most of those years were dealing with the past atrocities that she has suffered. Those former years, before I knew her, have made me angry and hurt at the people that have hurt her. I can do nothing about those people but I can be there for Tabitha. Now, as almost insult to injury, she has been plagued with a debilitating disease. I’m not angry with God because of her life of torment and pain, He didn’t cause them, but He has lifted her up through them and has given her hope and a platform to help and encourage others. I never ask God why this is happening to Tabitha, in fact I think this is Satan’s way of trying to silence her, but he has failed to do that, her voice of hope and encouragement is stronger than ever. The sicker she gets, the more I encourage and the more I ask God to heal and protect her from Satan’s talons and I will do that until the day God calls me home.
I tell Tabitha that God is as all we have.  This is a fallen world and we, as the human race, have chosen to do our own thing, but God still stands and waits for His children to call out to Him, to call His name, to ask for help, healing and mercy and He has done just that for Tabitha. The help and healing isn’t manifested in the way we would always want, but still God continues to bring help and healing in new ways that is overwhelming victories. We see that God is doing greater things than just stopping the pain and sickness, He has created miracles that Tabitha and I rehearse continually to keep them fresh in our minds and hearts. That doesn’t mean God is not touched with our infirmities, He hates for His children to suffer, but suffering is a part of this world. One day this will all be over and we will go to a place of bliss forever. For now, we will stand, we will fight the enemy and we will continue to believe that God has a plan. Our faith and trust are in God. God has been my source of strength for longer than Tabitha has been alive, now I will be her source of strength. I will stand with her, hold her up when I need to, pray for her, encourage her, listen to her, cry with her and continue to love her just like the Father has loved me. In fact, that is how I have known how to be a father to Tabitha, God has been a great Father to me.

 

4 comments on “How does living with Autoimmune Disease affect our families?”

  1. It is a challenge, I know, for those who love us. What gets me are the family members who cannot see and therefore dismiss me as lazy, a liar, and useless. If only they could tolerate one day in my body, but of course, they would not survive; the weak never do. Sorry for my bitterness, but sometimes it must surface to keep me balanced and protected from the hurt that kills.

    Liked by 2 people

    1. Unfortunately autoimmune Disease is misunderstood by many people and we do recieve the brunt end of it like being dismissed as being lazy, making the whole thing up or useless when in fact we are not that all. We are warriors, the energy we use to just get up in the morning is tremendous, the energy we use to be with our family is great. My mission is to bring awareness to families, caregivers, friends, and sufferers what autoimmune disease is so that others do not have to continue to fight a battle to be believed on top of a battle of illness. So sorry this is your reality right now. ❤

      Liked by 1 person

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