What is autoimmune disease to me?

What is autoimmune disease? The medical definition is as follows; An illness that occurs when the body tissues are attacked by its own immune system. 

However, I have my own thoughts on what autoimmune disease means to me.

For me it’s not knowing what comes next. My good days are a normal person’s worst day. It’s the daily renewing of my mind to fight against depression, aggravation, and anger. It’s a daily awareness of how I feel, things I do, and how much I do.  It’s a daily fight for my life. 


Chronic illness is more than just a disease that makes my body hurt and an illness that won’t ever go away. It’s mentally draining, it attacks me to my core. Some of my biggest fears in life have had to be confronted in order to survive this illness. There isn’t room for wasting precious energy on things that I can’t control.

Facing a chronic illness is not easy, it’s scary and full of unknowns and unanswered questions. It can be lonely at times, even if you do have a full circle of supporters. I often see that other people say that no one understands them, and that is right! No one can possibly understand what you are going through except for yourself. It is your journey. However, we can’t get caught up in how much others do or do not understand what we are going through when we really can’t fully understand it ourselves. 

If you are a caretaker of someone with Autoimmune disease, the biggest gift you can give to your loved one is to say I believe you and listen. Understand that this illness is beyond what you can see, physically and psychologically. 

If you are one of my fellow spoonies, find a support system of others that you can gather information from and that can relate. If you need a support buddy, message me!

What is autoimmune disease to you? 




6 thoughts on “What is autoimmune disease to me?

  1. What a great post! I love what you said about people not being able to understand, but we can’t get caught up in how much they do or don’t understand. I couldn’t agree more. Holding onto that can keep us from moving forward. Knowing that our loved ones believe us and are there for us is a real blessing.

    Liked by 1 person

  2. You have so eloquently and accurately shared the frustrations of living with chronic illness. Being diagnosed with chronic fatigue over 15 years ago, it was a very long and lonely journey to wellness (I have been successfully managing it for several years now).

    One of the greatest gifts in this experience has been my strengthened and deepened spirituality. For when no one could identify what was happening to me and my body, and I continued to get sicker and sicker, my only relief was in prayer and God’s guidance. I have believed my entire life that “With God all things are possible,” and subsequently as you also state, “I can do all things through Christ who strengthens me.”

    Having an invisible illness is difficult for others to understand, and your words of advice to caregivers and the concerned are so apropos. My heart feels for you, for what you have been through most of your life yet you are a shining example of miracles. Offering your experience, understanding, encouragement and wisdom through your blog is another miraculous gift to the world. Warm wishes of healing to you.

    Liked by 1 person

    1. Thankyou so much! This really made my day today. 🙂 I am so happy to hear you have been able to manage your chronic fatigue syndrome for over 15 years! Wow, thats amazing! What are your secrets? Chronic Fatigue is a small part of my autoimmune illnesses but even still that small part feels like a mountain.

      Fighting something that you can’t just make better all by yourself sure puts a new perspective on things. I had to realize Jesus is all that I have, he is the only hope I have if I am going to get through this. I had to find my purpose and a big part of that was finding what he wanted for me. I never thought I would be sharing anything about my life but truthfully sharing with others has been a blessing for me.

      Liked by 1 person

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